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Relatives of people with spinal cord injury: a qualitative study of caregivers’ metamorphosis

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dc.contributor.authorJuguera Rodriguez, Laura
dc.contributor.authorPardo Rios, Manuel
dc.contributor.authorLeal Costa, César
dc.contributor.authorCastillo Hermoso, Matilde
dc.contributor.authorPerez Alonso, Nuria
dc.contributor.authorDiaz Agea, Jose Luis
dc.contributor.departmentEnfermería
dc.coverage.spatialEspañaes
dc.coverage.temporal2017es
dc.date.accessioned2024-02-06T12:00:06Z
dc.date.available2024-02-06T12:00:06Z
dc.date.issued2018-03-21
dc.description©2017. This manuscript version is made available under the CC-BY-NC-ND 4.0 license http://creativecommons.org/licenses/by-nc-nd/4.0/ This document is the Accepted, version of a Published Work that appeared in final form in Spinal Cord. To access the final edited and published work see https://doi.org/10.1038/s41393-018-0092-0
dc.description.abstractStudy design Qualitative study. Objective To detect the major challenges and needs reported by family member caregivers of people with spinal cord injury (SCI). Setting Family member caregivers of people with SCI and expert professionals were evaluated. This study was conducted in Spain, and most of the participants attended the National Paraplegics Hospital of Toledo. Methods We performed 25 semi-structured interviews. The data were analyzed from a phenomenological perspective using the Colaizzi method. Results The metamorphosis of the caregiver is a complex personal and family-related process. Analysis of the adjustment phase of the caregiving role allowed us to describe three stages, patterns, and trends. Five basic needs were identified. Conclusions People with SCI and their primary caregivers experienced changes in every sphere of their lives. Their most important needs were psychological support, social support, economic resources, information, training throughout the process of suffering, and the creation of informal groups of mutual aid.es
dc.formatapplication/pdfes
dc.format.extent12es
dc.identifier.citationSpinal Cord. Volume 56, 2018, p. 548-559 Fuente de impacto: WOS (JCR) Categoría: REHABILITATION (SSCIE) 2017 Índice de impacto: 1,936 Q2
dc.identifier.doihttps://doi.org/10.1038/s41393-018-0092-0
dc.identifier.issnPrint: 1362-4393 Electronic: 1476-5624
dc.identifier.urihttp://hdl.handle.net/10201/138718
dc.languageenges
dc.publisherSpringer-Naturees
dc.relationProyecto Plan Propio UCAM. Financiado por universidad privada. Proyecto conjunto con Hospital Nacional de Parapléjicos de Toledoes
dc.rightsinfo:eu-repo/semantics/openAccesses
dc.rightsAttribution-NonCommercial-NoDerivatives 4.0 Internacional
dc.rights.urihttp://creativecommons.org/licenses/by-nc-nd/4.0/
dc.subjectLesión medulares
dc.subjectCuidadores familiareses
dc.subjectNecesidadeses
dc.subjectMetodología cualitativaes
dc.subject.otherCDU::6 - Ciencias aplicadases
dc.titleRelatives of people with spinal cord injury: a qualitative study of caregivers’ metamorphosises
dc.typeinfo:eu-repo/semantics/articlees
dspace.entity.typePublicationes
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