Addressing the bias problem in the assessment of the quality of life of patients with dementia: Determinants of the accuracy and precision of the proxy ratings

Gómez García, Juan; Ato Lozano, Esther; Gómez Gallego, María

Publication:
Addressing the bias problem in the assessment of the quality of life of patients with dementia: Determinants of the accuracy and precision of the proxy ratings

dc.contributor.author	Gómez García, Juan
dc.contributor.author	Ato Lozano, Esther
dc.contributor.author	Gómez Gallego, María
dc.contributor.department	Atención Sociosanitaria
dc.date.accessioned	2024-07-26T10:24:58Z
dc.date.available	2024-07-26T10:24:58Z
dc.date.issued	2015-03
dc.description	© 2014 SERDI Publisher. This manuscript version is made available under the CC-BY-NC-ND 4.0 license http://creativecommons.org/licenses/by-nc-nd/4.0/ This document is the Published version of a Published Work that appeared in final form in The journal of nutrition, health & aging (JNHA). To access the final edited and published work see https://doi.org/10.1007/s12603-014-0564-7
dc.description.abstract	Objectives We aimed to examine the discrepancy between patients and caregivers' ratings of quality of life in terms of accuracy and precision, and identify factors associated with it, in order to facilitate the use of this scale as dementia progresses. Design Cross-sectional analytic study. Setting Day care centres. Participants: Community-living patients with Alzheimer's disease in early or moderate stage and their principal caregivers. Measurements Participants rated patients' quality of life using DEMQOL. The discrepancy was assessed using the individual difference score and the residuals for each domain of DEMQOL. The scores on Mini-Mental State Examination, Geriatric Depression Scale, Neuropsychiatric Inventory, Clinical Insight Rating Scale, Cumulative Illness Rating Scale, Health Utilities Index Mark 3 and Zarit Burden Interview were considered as possible predictors of the discrepancy. Results A total of 276 subjects participated in the study (138 patients with Alzheimer's disease and their caregivers). Discrepancy measured by individual difference score was lower than that measured by the residuals. Burden and mood-related symptoms explained the positive differences and residuals, while pain, self-perceived depression and cognition determined the negative ones. Conclusions Differences exist between patients and caregivers' perceptions about subjective states. The evaluations of each informant seem to be influenced by their own emotional state and the inner experience of the effects of the disease. Caregivers' ratings on DEMQOL could be useful to monitor the efficacy of any treatment whenever burden is low and patients have no great physical or emotional suffering.	es
dc.format	application/pdf	es
dc.format.extent	8	es
dc.identifier.citation	The journal of nutrition, health & aging, 2015, Vol. 19, Issue 3, pp. 365-372.
dc.identifier.doi	https://doi.org/10.1007/s12603-014-0564-7
dc.identifier.issn	Print: 1279-7707
dc.identifier.issn	Electronic: 1760-4788
dc.identifier.uri	http://hdl.handle.net/10201/143375
dc.language	eng	es
dc.publisher	Elsevier	es
dc.relation	Sin financiación externa a la Universidad	es
dc.relation.publisherversion	https://www.sciencedirect.com/science/article/pii/S1279770723014069
dc.rights	info:eu-repo/semantics/openAccess	es
dc.rights	Attribution-NonCommercial-NoDerivatives 4.0 Internacional	*
dc.rights.uri	http://creativecommons.org/licenses/by-nc-nd/4.0/	*
dc.subject	Quality of life	es
dc.subject	Discrepancy	es
dc.subject	Disease s’Alzheimers	es
dc.subject	DEMQOL	es
dc.title	Addressing the bias problem in the assessment of the quality of life of patients with dementia: Determinants of the accuracy and precision of the proxy ratings	es
dc.type	info:eu-repo/semantics/article	es
dspace.entity.type	Publication	es
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