Publication: Diez consideraciones ético-jurídicas en relación con la reutilización y big data en el ámbito sanitario.
Authors
Ausín, Txetxu ; Andreu Martíenz, Belén ; Valero Torrijos, Julián ; Cayón de las Cuevas, Joaquín
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Publisher
Universidad de Murcia, Servicio de Publicaciones
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DOI
https://doi.org/10.6018/bioderecho.465761
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info:eu-repo/semantics/other
Description
Abstract
Diferentes grupos de investigación con proyectos vigentes en materia de protección de datos de carácter personal, reutilización de la información del sector público y datos abiertos organizaron el pasado día 29 de octubre de 2020 un seminario sobre reutilización y big data en el ámbito sanitario, en el que participaron investigadores, gestores y policymakers de diferentes disciplinas. Partiendo de la premisa de la especial importancia del acceso a los datos de salud como recurso para la investigación, la gestión y el desarrollo de productos, tratamientos e intervenciones sanitarias y, a la vez, de su consideración como categoría de datos especialmente sensibles, privados y protegidos, el presente documento persigue sistematizar las principales conclusiones alcanzadas.
Various research groups with ongoing projects in the areas of personal data protection, reuse of public sector information and open data (1) organised a seminar on October 29, 2020, on reuse and big data in the field of health in which researchers, managers and policymakers from different disciplines participated (2). Starting from the premise of the special importance that access to health data has as a resource for research, management and development of health products, treatments and interventions and, at the same time, its consideration as a special category of data that is particularly sensitive, private and protected, this document seeks to systematise the main conclusions reached.
Various research groups with ongoing projects in the areas of personal data protection, reuse of public sector information and open data (1) organised a seminar on October 29, 2020, on reuse and big data in the field of health in which researchers, managers and policymakers from different disciplines participated (2). Starting from the premise of the special importance that access to health data has as a resource for research, management and development of health products, treatments and interventions and, at the same time, its consideration as a special category of data that is particularly sensitive, private and protected, this document seeks to systematise the main conclusions reached.
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Citation
Bioderecho, Nº 12, 2020
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