Browsing by Subject "Disenfranchised grief"

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    Impact of perinatal death on the social and family context of the parents
    (MDPI, 2020-05-14) Fernández Sola, Cayetano; Camacho Ávila, Marcos; Hernández Padilla, José Manuel; Fernández Medina, Isabel María; Jiménez López, Francisca Rosa; Hernández Sánchez, Encarnación; Conesa Ferrer, María Belén; Granero Molina, José; Enfermería
    Background: Perinatal death (PD) is a painful experience, with physical, psychological and social consequences in families. Each year, there are 2.7 million perinatal deaths in the world and about 2000 in Spain. The aim of this study was to explore, describe and understand the impact of perinatal death on parents’ social and family life. Methods: A qualitative study based on Gadamer’s hermeneutic phenomenology was used. In-depth interviews were conducted with 13 mothers and eight fathers who had su ered a perinatal death. Inductive analysis was used to find themes based on the data. Results: Seven sub-themes emerged, and they were grouped into two main themes: 1) perinatal death a ects family dynamics, and 2) the social environment of the parents is severely a ected after perinatal death. Conclusions: PD impacts the family dynamics of the parents and their family, social and work environments. Parents perceive that society trivializes their loss and disallows or delegitimizes their grief. Implications: Social care, health and education providers should pay attention to all family members who have su ered a PD. The recognition of the loss within the social and family environment would help the families to cope with their grief.